Who We Are

We are not just patient leaders running our own disease foundations. We have decades of combined experience in law, business and philanthropy. We came together to create a viable path forward for patient-centered drug development.

At the Buffalo Initiative, we do not accept what is standing in the way of finding treatments for millions of children suffering from genetic brain diseases -- a lack of investment, incentive and coordination to address the issues that matter most to families. This is why we are forming a multi-stakeholder collaborative that will create a more equitable and productive clinical research ecosystem focused on achieving rapid gains in human health.