Who We Are

The Buffalo Initiative was founded when a group of patient leaders with decades of combined experience in law, business and philanthropy, in addition to running their own disease foundations, came together to create a viable path forward for patient-centered drug development.

At the Buffalo Initiative, we do not accept what is standing in the way of finding treatments for millions of children suffering from genetic brain diseases -- a lack of investment, incentive and coordination to address the issues that matter most to families. This is why we are forming a multi-stakeholder collaborative focused on creating a more equitable and productive clinical research ecosystem that is driven by patient-led research organizations.